Achalasia Foundation2018-05-29T17:52:02+00:00

Please keep in mind the distinction between healing and treatment: treatment originates from outside, whereas healing comes from within.

Andrew Weil

Please keep in mind the distinction between healing and treatment: treatment originates from outside, whereas healing comes from within.

Andrew Weil

In January 2017, I was diagnosed with a rare disease called Achalasia.

It took almost 8 months of suffering and testing before a definitive diagnosis was given, and that was due to my own advocacy efforts. I was young, active, and healthy. However, this disease quickly ate away at muscle mass and put me at risk for malnourishment and completely puzzled doctors. I had a Heller Myotomy with partial Fundoplication surgery in March 2017 that doctors were hopeful would be the solution. However, a few months later I learned I am one of the 5% of patients for which the surgery is unsuccessful without obvious cause. Instead of trialing additional surgeries, I am fighting against this disease by taking the best care of my mind and body that I can, while continuing to learn more with time. This page provides some additional background on Achalasia and a link to the Martin Mueller IV Achalasia Awareness Foundation where you can learn more.

Achalasia is a rare degenerative disease of the esophagus that affects about 1 in 100,000 people. It makes it difficult for patients to swallow solid or liquid foods because the nerves that are used to move food from our mouth to our stomach no longer cooperate. They’ve basically decided to retire…never come back to work. This usually results in food or liquid becoming backed up in the esophagus similar to water in a kinked hose. The only way to then move the food or liquid is to forcefully (and painfully) push it down, or…..well…..force it back up and out.

At this time, there is no known cause of Achalasia, although some countries have chosen to designate it as an autoimmune condition. Because there is no known cause of Achalasia, there is not a cure. Many patients continue to worsen over time, but some are able to maintain normal-ish lives after surgical intervention.

The Martin Mueller IV Achalasia Awareness Foundation was created in 2010 to help support patients, and families, affected by this rare condition. This Foundation is how I came to discover more about my condition than even my physicians did until I located a specialist familiar with Achalasia.

Please consider helping us raise awareness, support continued research, and one day find the missing link to help those with Achalasia be fully well again.

Donate Here